Future with no future experience

So many of our experiences deal with outcomes and expectation of a bright future. For example, we talk about education in a sense of its outcomes (skills, jobs, a better life). Another example is child raising.

But what to do when there is no future waiting at the end of these experiences. Emily Rapp recently wrote in the New York Times sharing her experience raising her son who has Tay-Sachs disease. Her son is 18 months old and very unlikely to live beyond his 3rd birthday. Here is the link to the full article.

She writes in a brave voice. She tells us that, at the end of the day, the best that you can do is living in the moment. In her case, loving her son in today moment and letting him go when the time comes. That is all you can do.